2:30 – 3:30 pm Friday, September 4

How to Return Research Results to Patients and Families? The Children’s Oncology Group Experience (C232)

In North America, the majority of children with cancer will enroll in a clinical trial at some point during their treatment. Clinical research is rooted in the premise that the quantity and quality of human lives will be improved by carefully conducted clinical and basic research.

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Speaker:
Kimberly Pyke-Grimm, PhD RN CNS CPHON®
CNE Hours
1
3:10–3:30 pm Friday, September 4

Paper Presentation: Patient and Parent Experiences of Cancer Symptoms as Assessed by the Memorial Symptom Assessment Scale for Children (231-3)

Treatment for childhood cancer is associated with symptoms that contribute to poorer psychological and physical functioning and decreased quality of life. Symptom assessment scales have been used to identify the prevalence, severity, and distress related to cancer treatment.

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Speaker:
Melody Hellsten, DNP APRN PPCNP-BC CHPPN
CNE Hours
0.34
2:50 – 3:10 pm Friday, September 4

Paper Presentation: Perceived Usefulness and User Satisfaction of Electronic and Paper-and-Pencil Symptom Tracking Diaries for Young Children with Cancer: Parent Perspectives (231-2)

"Because much of the cancer care for young children occurs in the outpatient setting, parents have the responsibility of identifying and responding to the child’s symptoms at home. Having a tool that parents could use to record their child's daily symptoms could help to provide insight into the symptoms the child is experiencing. Although multiple resources have been developed to support symptom tracking, ensuring usability is key.

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Speaker:
Sharifa Al-Qaaydeh, PhD RN 
CNE Hours
0.33
2:30 – 2:50 pm Friday, September 4

Paper Presentation: Examining Self-Reported Pain of School-Age Children Undergoing Treatment for Cancer Using a Game-Based App (231-1)

The goal of this presentation is to describe the daily pain experiences reported by 19 school-age children with cancer participating in a trial of a game-based symptom assessment app. We will discuss the prevalence of pain and how participants elected to communicate their pain within the app, using child-centric rating scales, an avatar to localize pain, and free-text responses.

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Speaker:
Katherine Bernier Carney, PhD RN
CNE Hours
0.33
2:30 – 3:30 pm Friday, September 4

Preparing Patients and Families for the Off-Therapy Transition (230)

Completion of cancer-directed therapy can be an exciting time for patients and their families but may also be anxiety provoking as they face a new set of challenges and a “new normal.” Patients may be returning to school with new needs for academic accommodations or returning to the care of their primary care provider, who may have limited experience with childhood cancer survivors.

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Speaker:
Emily Browne, DNP RN CPNP
CNE Hours
1
2:30 – 3:30 pm Friday, September 4

Below the Surface:  Applying Evidence-Based Practice in Skin Care Management with the Hematopoietic Cell Transplant Patient (229)

Children and adolescents undergoing hematopoietic cell transplant (HCT) are at high risk for developing skin complications. Nurses play a vital role in the assessment, prevention, and management of skin issues in this population where multiple factors lead to skin complications.

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Speaker:

Nancy Noonan, MS RN PCNS-BC BMTCN®

Linda Abramovitz, MSN RN CNS FAAN BMTCN®

Lisa Pinner, RN MSN CNS BMTCN® CPON® 

CNE Hours
1
2:30 – 3:30 pm Friday, September 4

This is Awkward...  Having Difficult Conversations about AYA Sexual Health (227)

Sexual and reproductive health (SRH) is a key aspect of physical health, emotional health, and quality of life in adolescents and young adults (AYAs) with cancer and blood disorders both during and after treatment. AYAs increasingly identify concerns with sexual function, contraception, fertility, and psychosexual adjustment and report conversations on these topics rarely take place with providers.

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Speaker:
Stacy Whiteside, MS APRN CPON® CPNP-AC/PC 
CNE Hours
1
12:15 – 1:15 pm Friday, September 4

High Risk Neuroblastoma in the new decade: Incorporating targeted therapies to maximize impact in current Children’s Oncology Group trials (C226)

While the overall cure rate for childhood cancer is approaching 80%, the prognosis for long-term survival for children with high risk neuroblastoma lags considerably behind, at 50%–60%. Upfront standard treatment for high-risk neuroblastoma protocols within the Children’s Oncology Group (COG) has historically utilized all available modalities of cancer treatment including chemotherapy, surgery, myeloablative chemotherapy with stem cell rescue, radiation therapy, differentiating agents, and most recently biologic therapy with anti-GD2 antibody (dinutuximab) used post consolidation in ANBL0032.

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Speaker:

Wendy Fitzgerald, MSN APRN PPCNP-BC

Denise Mills, MN RN(EC) NP CPHON®

CNE Hours
1
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