Hematopoietic stem cell transplantation (HSCT) and chimeric antigen receptor (CAR) T-cell therapy are potentially curative therapies for children with life-threatening conditions but can result in a high symptom burden and poor quality of life (QoL).
This session will review the results of a multisite study that prospectively evaluated the impact of parent psychological distress on symptoms and quality of life experienced by children undergoing transplantation or cellular therapy. Clinical implications such as routine, comprehensive symptom assessment with the novel, multimodal interventions, and increased psychoeducational support tailored to address parental distress will be discussed.
- Career Development Event: Career Development Event: Your CV, Your Key to Professional Development (CDE)
- General Session: Gene Therapy and Gene Editing as a Treatment Option for Patients with Hemoglobinopathies (103)
- Clinical Pearls of Pediatric Brain Tumors for the Advanced Practice Nurse (222)
- Protect Your Professional Life: Beware of Predatory Publishers and Conferences (223)
- Adopt, Adapt, Advance: Utilizing Evidence Based Practice, Quality Improvement and Nursing Research to Transform Pediatric Hematology/Oncology Nursing Practice (224)
- Jessica Ward, PhD MPH CPNP RN
- CNE Hours: