2:15 pm – 3:15 pm Saturday, September 17

Strategies in Survivorship Care: Addressing Current Long-term Follow-up Surveillance Gaps Through Individualized Survivorship Care Plans And Specialty Survivorship Clinics (234) 

With current 10-year survival rates greater than 80% for pediatric, adolescent, and young adult (AYA) cancer patients there exists and ever-increasing population of pediatric and AYA cancer survivors. Pediatric and AYA survivors who finish cancer-directed treatment are often burdened with significant risks for long-term complications. This includes risks of secondary cancers and accelerated development of usual age-related comorbid conditions such as heart failure, kidney disease and osteopenia. Given these risks, cancer survivors require specialized health care monitoring and surveillance. The Childhood Cancer Survivor Study has identified significant, suboptimal adherence to COG screening guidelines for secondary malignancies (breast, colorectal, and skin) and cardiac disease amongst this high-risk population. Many survivors and their caregivers also report that they feel uninformed yet worried about potential late effects. This current gap emphasizes the importance of individualized survivorship care post cancer treatment, both short and long term.

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Speaker:
Stephanie Neerings MSN APRN FNP-BC
CNE Hours
1
2:45 pm – 3:15 pm Saturday, September 17

Renewed Hope for the Future: Menin Inhibitors for Relapsed/Refractory Leukemia (233)

Prognosis for pediatric patients and adolescents with multiple relapsed/refractory leukemia remains grim. Many have received relapsed protocols, CAR-T therapies, stem cell transplants and yet, the disease returns. In the past, the next discussion in this patient population would lead towards palliation and quality of life, with little hope for cure. Recent advancement in therapy for children with refractory leukemia has introduced the use of menin inhibitor in patients with KMT2A/MLL and NPM1 mutations, providing a number of young patients with another chance of remission and a chance at a cure. Read more...
11:00 am – 12:00 pm Saturday, September 17

Pediatric Anticoagulation: Who, What, When, Where, and Why (and a little How) (225) 

Pediatric anticoagulation can present challenges to the advanced practice nurse (as well as the ambulatory or bedside nurse) with limited experience in the broad scope of clinical scenarios where either prophylactic or treatment anticoagulation is recommended (it's not just clots). Traditionally, the only pharmacologic options utilized in children have been limited to heparin (including low molecular weight heparin) and warfarin. However, direct oral anticoagulants (DOACs) are now being incorporated in a limited fashion, dependent on both age of the child and clinical application. Read more...
11:00 am – 12:00 pm Saturday, September 17

Nutritional Support: Best Practices for Pediatric Blood and Marrow Transplant Patients (226)

Nutrition is vital for children to grow and thrive. This is especially important in children with conditions requiring blood and marrow transplantation (BMT) who receive prolonged, intensive therapy requiring optimal overall health and nutritional status (Baumgartner, 2017). Chemotherapy is associated with nausea, vomiting, diarrhea, poor appetite, taste changes, mucositis, and increased catabolic demands (McMillen et al., 2020). Malnutrition rates in the pediatric oncology/BMT population range from 6 to 50% (McMillen et al, 2020), and this can have significant consequences. Read more...
2:15 pm – 3:15 pm Saturday, September 17

Novel therapeutics and Molecular Based Tumors Boards for CNS tumors; Role of a Nurse Investigator Committee within Clinical Trial Consortiums (231)

Nurses and advanced practice providers (APPs) have led an effort to engage nurse scientists in collaborative work within clinical trial consortiums. In the spring of 2021 a new nursing and APP committee was created within the Pediatric Neuro-Oncology Consortium (PNOC). Prior to finalizing the structure of this committee, a one-time, de-identified survey was distributed to all members of PNOC. A total of 68 surveys were returned from 20 different institutions spanning across the globe. Read more...
11:00 am – 12:00 pm Saturday, September 17

Building Effective Partnerships in Nursing Practice and Research: Patient Advocacy Organizations and Nurses Supporting Each Other For Best Outcomes (227)

The engagement of patients and caregivers is increasingly more important in the design, conduct and dissemination of research (Kwon, Tandon, Islam, Riley, & Trinh-Shevrin, 2018). Patient advocacy organizations, such as Momcology, are often developed and led by patients, parents and/or caregivers. These organizations are one mechanism to consider when working to implement community engagement and recruitment strategies. Community engagement is far more than the addition of a community advisory board to organizations such as hospitals, agencies or research trials. Authentic engagement should mimic a partnership, including stakeholders in all phases of research from design, conduct, implementation, analysis and dissemination (Woolf, Zimmerman, Haley, & Krist, 2016). Read more...
2:15 pm – 3:15 pm Saturday, September 17

Antiracism in Nursing: Where Do We Begin? (232)

In May of 2020, the murder of George Floyd and the resulting unrest that ensued, sparked outrage throughout our community and around the world. Given the proximity of this event to our hospital, a group of 5 BIPOC (Black, Indigenous, and People of Color) nurses came together to share experiences and highlight disparities, which resulted in the formation of an employee resource group, FUSION (Facilitators of Unity & Strengtheners of Inclusivity of Nursing). They identified that the healthcare system had racist biases and behaviors built into the workplace, which negatively impacted health outcomes for BIPOC, pediatric patients and staff. FUSION began to identify pitfalls and opportunities for improvement related to diversity, equity, and inclusion in the pediatric care areas. Read more...
4:15 pm – 5:15 pm Friday, September 16

You Deserve to Preserve: A Proposal to Offer Fertility Preservation to All Eligible Pediatric Oncology Patients (221)

Fertility preservation, the opportunity to preserve one’s ability to have genetically-related children prior to damaging or destroying the reproductive system, is a young but rapidly expanding field. Historically, fertility preservation has only been available to postpubertal male and female cancer patients via oocyte, embryo, and sperm cryopreservation. Read more...
9:45 am – 10:45 am Friday, September 16

Photobiomodulation for Prevention and Treatment of Oral Mucositis: Part II (214)

Oral mucositis is a significant and common toxicity experienced by patients who receive high-dose chemotherapy as a preparatory regimen for a hematopoietic cell transplant (HCT). Photobiomodulation has been found to be feasible with significant efficacy in preventing the progression of oral mucositis in patients undergoing HCT. Read more...
9:45 am – 10:45 am Friday, September 16

Next Generation Patient Safety: Keeping Nurses Safe Too (212)

Nursing is a dangerous profession. Nurses are at risk for physical, emotional, and legal consequences, which may manifest in various concerning ways. Compared with the general population, the rate of completed suicide is double for nurses and considerably higher than other healthcare workers. Many nurses experience occupational violence committed by patients, families, or even colleagues. Much of the abuse goes unreported. Read more...
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