3:10–3:30 pm Friday, September 4

Paper Presentation: Symptom Reporting Strategies—Patient and Parent Experiences of Cancer Symptoms as Assessed by the Memorial Symptom Assessment Scale for Children (231-3)

Treatment for childhood cancer is associated with symptoms that contribute to poorer psychological and physical functioning and decreased quality of life. Symptom assessment scales have been used to identify the prevalence, severity, and distress related to cancer treatment.

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Speaker:
Melody Hellsten, DNP APRN PPCNP-BC CHPPN
CNE Hours
0.34
2:30 – 3:30 pm Friday, September 4

Preparing Patients and Families for the Off-Therapy Transition (230)

Completion of cancer-directed therapy can be an exciting time for patients and their families but may also be anxiety provoking as they face a new set of challenges and a “new normal.” Patients may be returning to school with new needs for academic accommodations or returning to the care of their primary care provider, who may have limited experience with childhood cancer survivors.

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Speaker:
Emily Browne, DNP RN CPNP
CNE Hours
1
2:30 – 3:30 pm Friday, September 4

This is Awkward...  Having Difficult Conversations about AYA Sexual Health (227)

Sexual and reproductive health (SRH) is a key aspect of physical health, emotional health, and quality of life in adolescents and young adults (AYAs) with cancer and blood disorders both during and after treatment. AYAs increasingly identify concerns with sexual function, contraception, fertility, and psychosexual adjustment and report conversations on these topics rarely take place with providers.

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Speaker:
Stacy Whiteside, MS APRN CPON® CPNP-AC/PC
CNE Hours
1
12:35 – 12:55 pm Friday, September 4

Paper Presentation: Outcomes of Serious Illness on Nurses, Patients, and Families—Inpatient Deaths of Children with Cancer: DNAR and CPR Events in Children Who Don’t Survive to Hospital Discharge (225-2)

Death in children with malignancy may result from refractory disease or acute complications during therapy. In this population, little is known about the medical interventions received in the last week of life from the overall cohort of children who die from cancer or related complications as inpatients. Perceptions of under- or over-treatment can cause distress among families and staff, yet the prevalence of do not attempt resuscitation (DNAR) orders, use of CPR, and other supportive therapies remains poorly described.

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Speaker:

Liza-Marie Johnson, MD MPH MSB HEC-C

Belinda Mandrell, PhD RN CPNP

CNE Hours
0.33
12:15 – 12:35 pm Friday, September 4

Paper Presentation: Outcomes of Serious Illness on Nurses, Patients, and Families—Keeping a Positive Outlook – Strategies, Threats, and Outcomes for Parents of Children with Cancer and Other Serious Illness (225-1)

Parents who make end-of-life decisions for their seriously ill children do so according to their individual definitions of ‘being a good parent’ to their seriously ill child. This pediatric cancer nursing concept, developed by Pamela Hinds, has been applied to parents of critically ill children but has potential relevance for other pediatric contexts.

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Speaker:
Katherine Kelly, PhD APRN PCNS-BC CPON®
CNE Hours
0.33
2:30 – 3:30 pm Thursday, September 3

Reproductive Health: from Diagnosis through Survivorship – Resources and Perspectives from the Children’s Oncology Group (C221)

coglogoPuberty and sexual and reproductive health are normal parts of human growth and development. Adolescence and young adulthood are developmental times of exploration of sexual identity and planning for the future, which may include parenting goals. A cancer diagnosis does not preclude a patient or their family from concern about sexual and reproductive health.

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Speaker:
Brooke Cherven, PhD MPH RN CPON®
Barbara Lockart, DNP APRN PC & AC CPHON®
CNE Hours
1
12:55 – 1:15 pm Thursday, September 3

Paper Presentation: Supporting Patient Well-Being and Quality of Life—Psychosocial interventions to improve social health of adolescents and young adults with cancer: A review (214-3)

The incidence of cancer diagnosis in the adolescent and young adult (AYA) population has been increasing, and more frequently these patients are being cared for at pediatric institutions. The AYA population has a set of psychosocial needs that differ from other age groups. Failure to tend to these needs leads to a host of negative health outcomes from cancer and therapy and negatively impacts the quality of life.

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Speaker:
Clifton Thornton, MSN RN CNMT CPNP
CNE Hours
0.34
12:35 – 12:55 pm Thursday, September 3

Paper Presentation: Supporting Patient Well-Being and Quality of Life—The Influence of Health Seeking Behavior on the Health Literacy of Adolescents with Sickle Cell Disease (214-2)

Between 94% and 98% of children with sickle cell disease (SCD) are living to age 18 years and beyond. However, patients with SCD experience significant morbidity and mortality after they transfer from pediatric care to adult care. One hypothesis is that health literacy plays a role in the transition of children with SCD from pediatric care to adult care.

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Speaker:
Elizabeth Perry Caldwell, PhD RN
Libby Rosonet, MSN RN CPHON®
CNE Hours
0.33
3:50 – 4:10 pm Wednesday, September 2

Paper Presentation: Symptoms Across the Cancer Continuum—Symptoms and Quality of Life of Children and Adolescents Receiving Cellular Therapies (209-2)

Hematopoietic stem cell transplantation (HSCT) and chimeric antigen receptor (CAR) T-cell therapy are potentially curative therapies for children with life-threatening conditions but can result in a high symptom burden and poor quality of life (QoL).

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Speaker:
Jessica Ward, PhD MPH CPNP RN
CNE Hours
0.33
10:45 – 11:00 am Wednesday, September 2

Cancer Predisposition: Li-Fraumeni Syndrome in Pediatrics, Nurses Can Make A Difference in Quality of Life and Long-Term Survival Through Screening and Education (201-1)

Oncology nurses provide care for patients and families with multiple early-onset cancers. This session will review Li-Fraumeni Syndrome (LFS), a genetic cancer predisposition syndrome. It is recognized as a mutation in the TP53 gene, the most frequently mutated gene in sporadic cancers. LFS is defined as any germline mutation in the TP53 tumor suppressor gene that is passed down in an autosomal dominant pattern.

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Speaker:
Heather Meador, MSN APRN CPNP CPHON®
Whitney Throckmorton, MPAS PA-C
CNE Hours
0.5
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