10:50 am – 11:10 am Saturday, September 17

Understanding the Current State of Pediatric Oncology Nursing Quality Measurement in Free-Standing Children’s Hospitals Across the United States (229-2)

The impact of nursing care on patient outcomes has been demonstrated in adult and pediatric settings but limited attention has been given to standardized measurement of pediatric oncology nursing care.

With advances in pediatric cancer therapy, patients may be offered multiple treatment modalities which require intensive nursing support. To provide high quality care for these complex patients with evolving needs, pediatric oncology nurses require specialized skills, knowledge and appropriate resources. Given the gap in current literature addressing the impact of nurse sensitive measures that impact the quality of nursing care across the pediatric oncology continuum, the first step was to identify these potential measures. The ability to identify key performance measures and to articulate their value in the delivery of nursing care is central to improving the quality of the patient/family/employee experience in this highly complex and specialized environment. Using process measures allows for greater understanding of the extent to which clinical care is following best practice.

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Speaker:
Pamela Dockx BSN RN CPON®
CNE Hours
0.33
9:45 – 10:45 am Thursday, September 15

Using Your Resources-The Role Of A Clinical Resource Nurse (208-2)

Patient census and acuity throughout healthcare institutions continue to rise as staffing numbers and resources remain the same. Nursing is asked to create innovative ways to maximize staff productivity and efficiency, decrease burnout and increase retention while improving patient care. The development of a Clinical Resource Nurse (CRN) is an innovative approach to maximize the nurse's clinical potential and improve unit efficiency while working within the context of the current staffing model.

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2:15 pm – 2:35 pm Saturday, September 17

Do Parents Protect Themselves When Administering Home Oral Chemotherapy to Children with Acute Lymphoblastic Leukemia? (235-1)

As part of cancer treatment, parents of children with cancer are expected to administer multiple medications to their child in the home setting (Landier et al., 2016). Safe practices in delivering oral chemotherapy are an essential part of the education of parents of children with cancer (Rodgers et al., 2018). Little is known about what parents actually do in the home setting to protect themselves from exposure when administering oral chemotherapy.

 

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2:45 pm – 3:05 pm Saturday, September 17

Association of Health Literacy with Comprehension of Key New Diagnosis Education Concepts in Parents/Caregivers of Children with Cancer (235-2)

Parents/caregivers of children newly diagnosed with cancer are expected to adequately care for their child at home upon hospital discharge, which entails understanding how to manage medication schedules, recognize key signs and symptoms, and access care emergently (Landier et al., 2016). Read more...
10:30 am – 10:50 am Saturday, September 17

A Collaborative Approach to the Development of Specialized Nursing Education in a Lower Middle-Income Country (Ghana) (229-1)

Children with cancer in low- and middle-income countries are four times more likely to die of the disease than those in high income countries. Expert nurses are critical to a successful pediatric oncology program, yet few opportunities exist for nurses across Ghana to receive specialized education. Read more...
4:55 pm – 5:15 pm Friday, September 16

Wearing Two Hats: Professional Boundaries When Balancing Direct Care and Research Roles (223-3)

Nursing care, whether in the clinical or research context, is guided and directed by the ANA Code of Ethics for Nurses. The Code of Ethics is based on the ethical principles of beneficence, nonmaleficence, autonomy and justice. These principles can serve to guide nurses as they navigate what may seem to be competing roles of direct-care nurse and nurse intervenor. This presentation will describe: 1) role conflicts that may present when the nurse functions as both care provider and intervenor as part of a research study and 2) strategies for managing role conflict.

Learning Objectives:

  • Describe role conflicts that may present when direct care nurses including advance practice nurses serve as intervenors in randomized clinical trials.
  • Identify key ethical principles that the nurse must always consider when providing care either in the clinical or research context.
  • Outline strategies to manage role conflicts that may present when direct care nurses serve as intervenors in randomized clinical trials.
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4:15 pm – 4:35 pm Friday, September 16

Decreasing Ambulatory CLABSIs in Oncology Patients (223-1)

Ambulatory CLABSIs occurring in the pediatric oncology patient population result in increased hospitalizations, additional medications, potential for line removal, delayed treatment, decreased pt. satisfaction, and potentially worse pt. outcomes. While much attention has been given to hospital acquired infections, less focus has been given to community occurring infections. This session will describe a quality improvement project performed with the aim of decreasing the rate of ambulatory CLABSIs.

Learning Objectives:

  • The learner will be able to discuss the problem of ambulatory CLABSIs in the oncology population
  • The learner will identify potential cause and effect of ambulatory CLABSIs
  • The learner will be able to describe quality improvement initiatives designed to decrease incidence of ambulatory CLABSIs
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Speaker:
Angie Blackwell MSN RN ACCNS-P CPON®
CNE Hours
.33
4:15 pm – 5:15 pm Friday, September 16

Immune-Mediated Thrombocytopenia: A Clinical Overview (220)

Primary immune thrombocytopenia (ITP) is one of the most common hematologic conditions encountered in pediatric hematology and is a diagnosis of exclusion with no specific testing available to confirm the condition. While fairly consistent and typical in presentation, the astute clinician must be able to differentiate between immune and nonimmune etiologies of thrombocytopenia in order to confirm an accurate diagnosis, etiology, and treatment plan while shielding the patient from unnecessary testing and workup. Read more...
4:15 pm – 5:15 pm Friday, September 16

Can Symptom Scores And Symptom Profiles Be More Clinically Useful? (219)

Symptom science has rapidly evolved over the past two decades, with progression from symptom measurement to sophisticated approaches to analyzing symptom data to illuminate symptom patterns. Cluster and person-specific approaches have been used in pediatric oncology research, but discussion of the clinical value of data generated from these approaches is lacking. Read more...
5:00 pm – 5:30 pm Thursday, September 15

The Role of the Pediatric Clinical Research Nurse in the Management of Severe Aplastic Anemia (208-1)

Severe aplastic anemia (SAA) is a serious and life-threatening condition with an unknown etiology, involving improper production of stem cells due to damaged bone marrow. Without functional stem cells, the body is depleted of red blood cells, white blood cells, and/or platelets. With only 600 to 900 cases diagnosed each year in the U.S. alone, SAA is rare. Most patients are only provided supportive care measures: receiving blood transfusions to manage symptoms and adhere to complex medication regimens to limit complications; however, advancements in treatment of SAA are made possible through clinical research trials. The Clinical Research Nurse (CRN) must address the clinical needs of the research patient, but also be sensitive to the psychosocial and ethical issues of supporting pediatric research patients. This case study presents a 7-year old Mongolian patient, “M.B.”, with refractory SAA, who failed standard immunosuppressive therapy and failed to engraft from a previous expanded umbilical cord stem cell transplant. M.B. was enrolled in a clinical research protocol in which he underwent a haplo-identical transplantation using peripheral blood stem cells and post-transplant GVHD prophylaxis using Cyclophosphamide. M.B.’s complex clinical trajectory will unfold over the course of the case study, with the role of the Clinical Research Nurse highlighted. In addition to clinical complications, the COVID-19 pandemic added an additional layer of psychosocial and ethical complexities for M.B. and his family to navigate. Application of the Clinical Research Nurse Domain of Practice ensures that the bedside nurse addresses the holistic needs of the research patient and caregiver at the bedside, while also maintaining the integrity of the research protocol. Read more...
Speaker:
Alejandra Castillo MSN RN
CNE Hours
.50
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