10:50 am – 11:10 am Saturday, September 17

Understanding the Current State of Pediatric Oncology Nursing Quality Measurement in Free-Standing Children’s Hospitals Across the United States (229-2)

The impact of nursing care on patient outcomes has been demonstrated in adult and pediatric settings but limited attention has been given to standardized measurement of pediatric oncology nursing care.

With advances in pediatric cancer therapy, patients may be offered multiple treatment modalities which require intensive nursing support. To provide high quality care for these complex patients with evolving needs, pediatric oncology nurses require specialized skills, knowledge and appropriate resources. Given the gap in current literature addressing the impact of nurse sensitive measures that impact the quality of nursing care across the pediatric oncology continuum, the first step was to identify these potential measures. The ability to identify key performance measures and to articulate their value in the delivery of nursing care is central to improving the quality of the patient/family/employee experience in this highly complex and specialized environment. Using process measures allows for greater understanding of the extent to which clinical care is following best practice.

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Speaker:
Pamela Dockx BSN RN CPON®
CNE Hours
0.33
10:15 am – 10:45 am Friday, September 16

HSCT for MPS disorders (Hunters and Hurlers), (217-2)

Hematopoietic Stem Cell Transplant (HSCT) is best known as a treatment modality for hematologic malignancies, some solid tumors, and various autoimmune disorders. It is lesser known as a means to halt progressive symptoms in certain chromosomal inherited disorders such as Hunters and Hurlers disease. Patients with Hunters and Hurlers are born with an inherited x-linked chromosomal disease where sugar molecules are unable to be broken down and digested by the body causing both physical and mental disabilities. There is no cure for these diseases but HSCT is an intensive therapy that has shown promise with these diagnoses, helping to stop progression of symptoms of disease.

Two case studies of children who underwent HSCT at our center, one for Hunter’s and one for Hurler’s, will be presented from both a medical and psychosocial standpoint. How these children first presented, how HSCT affect their disease, the complications they underwent during their HSCT, and the complex psychosocial aspects of receiving chemotherapy as well as an extended hospitalization.

Learning Objectives:

  • The learner will describe the role of Hematopoietic Stem Cell Transplant in the treatment of non-malignant diseases.
  • Identify conditioning regimens and their unique complications for non – malignant diseases.
  • The learner will describe the psychosocial needs of hematopoietic transplant patients and their families when they undergo a complex regiment such as HSCT.
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5:00 pm – 5:30 pm Thursday, September 15

Prior Authorization: Where was that in Nursing School? (207-1)

The world of healthcare has been dominated by discussion about COVID-19 over the past 2 years. At the same time, the field of pediatric hematology-oncology has continued to move forward with new therapies which offer hope for enhanced outcomes, specifically in the field of precision medicine. The topic that is not often recognized in those discussions is the growing complexity of payment for these therapies, as well as therapies that have been considered “standard” for many years. Nurses may be seeing increased requirement to participate in discussions about the cost or prior authorization of medications for their patients. In addition to these requirements, third party payors have growing expectations for prior authorization. At the same time, there are more third-party payor options on the market for families to choose, and unfortunately, some families are choosing plans that may not provide adequate coverage. The political climate has changed, as well, and the individual mandate for coverage, which was originally a part of the Affordable Care Act, was rescinded. New legislation has now created the No Surprises Act, which requires up-front estimate of the cost of care for specific situations. There was a time when care was scheduled as expected, and there was no need to worry about prior authorization, but in today’s world, nurses are likely hearing more and more about the status or need for “approval” of care in advance. This session will provide an overview of what pediatric hematology-oncology nurses may be experiencing as a part of daily operations in the care of these patients and families. An evolving model of multidisciplinary involvement to assure timely care in the face of growing third party payor expectations will be shared. Read more...
10:30 AM – 11:30 AM Saturday, September 17

The Future of Nursing 2020-2030: What We All Need to Know (224)

In 2021, the National Academy of Medicine (NAM), formerly known as the Institute of Medicine (IOM), released the report Future of Nursing (FON) 2020-2030: Charting a Path to Achieve Health Equity. This most recent report is the third report on the future of nursing, initially created with the sponsorship of the Robert Wood Johnson Foundation (RWJF) published in 2011 (National Academy of Sciences). Nurses at all levels need to be familiar with the needs of the profession and how they can get involved and make a difference for themselves and their patients. Read more...
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