2:30 – 3:30 pm Friday, September 4

Below the Surface:  Applying Evidence-Based Practice in Skin Care Management with the Hematopoietic Cell Transplant Patient (229)

Children and adolescents undergoing hematopoietic cell transplant (HCT) are at high risk for developing skin complications. Nurses play a vital role in the assessment, prevention, and management of skin issues in this population where multiple factors lead to skin complications.

Read more...
Speaker:

Nancy Noonan, MS RN PCNS-BC BMTCN®

Linda Abramovitz, MSN RN CNS FAAN BMTCN®

Lisa Pinner, RN MSN CNS BMTCN® CPON® 

CNE Hours
1
12:15 – 1:15 pm Friday, September 4

High Risk Neuroblastoma in the new decade: Incorporating targeted therapies to maximize impact in current Children’s Oncology Group trials (C226)

coglogoWhile the overall cure rate for childhood cancer is approaching 80%, the prognosis for long-term survival for children with high risk neuroblastoma lags considerably behind, at 50%–60%. Upfront standard treatment for high-risk neuroblastoma protocols within the Children’s Oncology Group (COG) has historically utilized all available modalities of cancer treatment including chemotherapy, surgery, myeloablative chemotherapy with stem cell rescue, radiation therapy, differentiating agents, and most recently biologic therapy with anti-GD2 antibody (dinutuximab) used post consolidation in ANBL0032.

Read more...
Speaker:

Wendy Fitzgerald, MSN APRN PPCNP-BC

Denise Mills, MN RN(EC) NP CPHON®

CNE Hours
1
9:30 – 10:30 am Friday, September 4

General Session: Gene Therapy and Gene Editing as a Treatment Option for Patients with Hemoglobinopathies (103)

Sickle cell disease is one of the most common inherited diseases in the Unites States, with a homozygous frequency of 1 in 400 African American births. The disease is associated with multiple complications including infections, veno-occlusive pain crisis, acute chest syndrome, and cerebrovascular accidents.

Read more...
Speaker:

Haydar Frangoul, MD MS

Misty Evans, DNP APRN CPNP-AC BMTCN®

CNE Hours
1
2:30 – 3:30 pm Thursday, September 3

Neurofibromatosis type 1 Diagnostic Updates and Plexiform Neurofibroma Treatment Options (218)

Neurofibromatosis (NF) 1 is a progressive autosomal dominant disorder that results from a germline mutation of a protein called neurofibromin that occurs in one out of every 3500 births (AANS, 2019). The clinical diagnosis of NF1 is based on the presence of two or more cardinal symptoms identified in the 1988 National Institute of Health (NIH) Diagnostic Criteria.

Read more...
Speaker:
Racheal Bingham, MSN CPNP CPON®
CNE Hours
1
2:30 – 3:30 pm Thursday, September 3

Marijuana, Hemp, and the Child with Cancer (217)

Many pediatric oncology patients report medical marijuana (MMJ) and hemp-based CBD use. Over 4,000 children are registered users of marijuana in Colorado, the first state to legalize recreational marijuana. Eleven states and Washington, DC have legalized marijuana for recreational use for adults older than 21.

Read more...
Speaker:
Molly Hemenway, DNP MS AC/PC-CPNP
CNE Hours
1
12:55 – 1:15 pm Thursday, September 3

Paper Presentation: Supporting Patient Well-Being and Quality of Life—Psychosocial interventions to improve social health of adolescents and young adults with cancer: A review (214-3)

The incidence of cancer diagnosis in the adolescent and young adult (AYA) population has been increasing, and more frequently these patients are being cared for at pediatric institutions. The AYA population has a set of psychosocial needs that differ from other age groups. Failure to tend to these needs leads to a host of negative health outcomes from cancer and therapy and negatively impacts the quality of life.

Read more...
Speaker:
Clifton Thornton, MSN RN CNMT CPNP
CNE Hours
0.34
12:35 – 12:55 pm Thursday, September 3

Paper Presentation: Supporting Patient Well-Being and Quality of Life—The Influence of Health Seeking Behavior on the Health Literacy of Adolescents with Sickle Cell Disease (214-2)

Between 94% and 98% of children with sickle cell disease (SCD) are living to age 18 years and beyond. However, patients with SCD experience significant morbidity and mortality after they transfer from pediatric care to adult care. One hypothesis is that health literacy plays a role in the transition of children with SCD from pediatric care to adult care.

Read more...
Speaker:
Elizabeth Perry Caldwell, PhD RN
Libby Rosonet, MSN RN CPHON®
CNE Hours
0.33
Subscribe to this RSS feed