3:10–3:30 pm Friday, September 4

Paper Presentation: Symptom Reporting Strategies—Patient and Parent Experiences of Cancer Symptoms as Assessed by the Memorial Symptom Assessment Scale for Children (231-3)

Treatment for childhood cancer is associated with symptoms that contribute to poorer psychological and physical functioning and decreased quality of life. Symptom assessment scales have been used to identify the prevalence, severity, and distress related to cancer treatment.

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Speaker:
Melody Hellsten, DNP APRN PPCNP-BC CHPPN
CNE Hours
0.34
2:50 – 3:10 pm Friday, September 4

Paper Presentation: Symptom Reporting Strategies—Perceived Usefulness and User Satisfaction of Electronic and Paper-and-Pencil Symptom Tracking Diaries for Young Children with Cancer: Parent Perspectives (231-2)

"Because much of the cancer care for young children occurs in the outpatient setting, parents have the responsibility of identifying and responding to the child’s symptoms at home. Having a tool that parents could use to record their child's daily symptoms could help to provide insight into the symptoms the child is experiencing. Although multiple resources have been developed to support symptom tracking, ensuring usability is key.

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Speaker:
Sharifa Al-Qaaydeh, PhD RN
CNE Hours
0.33
2:30 – 2:50 pm Friday, September 4

Paper Presentation: Symptom Reporting Strategies—Examining Self-Reported Pain of School-Age Children Undergoing Treatment for Cancer Using a Game-Based App (231-1)

The goal of this presentation is to describe the daily pain experiences reported by 19 school-age children with cancer participating in a trial of a game-based symptom assessment app. We will discuss the prevalence of pain and how participants elected to communicate their pain within the app, using child-centric rating scales, an avatar to localize pain, and free-text responses.

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Speaker:
Katherine Bernier Carney, PhD RN
CNE Hours
0.33
2:30 – 3:30 pm Friday, September 4

Preparing Patients and Families for the Off-Therapy Transition (230)

Completion of cancer-directed therapy can be an exciting time for patients and their families but may also be anxiety provoking as they face a new set of challenges and a “new normal.” Patients may be returning to school with new needs for academic accommodations or returning to the care of their primary care provider, who may have limited experience with childhood cancer survivors.

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Speaker:
Emily Browne, DNP RN CPNP
CNE Hours
1
2:30 – 3:30 pm Friday, September 4

This is Awkward...  Having Difficult Conversations about AYA Sexual Health (227)

Sexual and reproductive health (SRH) is a key aspect of physical health, emotional health, and quality of life in adolescents and young adults (AYAs) with cancer and blood disorders both during and after treatment. AYAs increasingly identify concerns with sexual function, contraception, fertility, and psychosexual adjustment and report conversations on these topics rarely take place with providers.

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Speaker:
Stacy Whiteside, MS APRN CPON® CPNP-AC/PC
CNE Hours
1
9:30 – 10:30 am Friday, September 4

General Session: Gene Therapy and Gene Editing as a Treatment Option for Patients with Hemoglobinopathies (103)

Sickle cell disease is one of the most common inherited diseases in the Unites States, with a homozygous frequency of 1 in 400 African American births. The disease is associated with multiple complications including infections, veno-occlusive pain crisis, acute chest syndrome, and cerebrovascular accidents.

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Speaker:

Haydar Frangoul, MD MS

Misty Evans, DNP APRN CPNP-AC BMTCN®

CNE Hours
1
2:30 – 3:30 pm Thursday, September 3

Reproductive Health: from Diagnosis through Survivorship – Resources and Perspectives from the Children’s Oncology Group (C221)

coglogoPuberty and sexual and reproductive health are normal parts of human growth and development. Adolescence and young adulthood are developmental times of exploration of sexual identity and planning for the future, which may include parenting goals. A cancer diagnosis does not preclude a patient or their family from concern about sexual and reproductive health.

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Speaker:
Brooke Cherven, PhD MPH RN CPON®
Barbara Lockart, DNP APRN PC & AC CPHON®
CNE Hours
1
12:55 – 1:15 pm Thursday, September 3

Paper Presentation: Supporting Patient Well-Being and Quality of Life—Psychosocial interventions to improve social health of adolescents and young adults with cancer: A review (214-3)

The incidence of cancer diagnosis in the adolescent and young adult (AYA) population has been increasing, and more frequently these patients are being cared for at pediatric institutions. The AYA population has a set of psychosocial needs that differ from other age groups. Failure to tend to these needs leads to a host of negative health outcomes from cancer and therapy and negatively impacts the quality of life.

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Speaker:
Clifton Thornton, MSN RN CNMT CPNP
CNE Hours
0.34
12:35 – 12:55 pm Thursday, September 3

Paper Presentation: Supporting Patient Well-Being and Quality of Life—The Influence of Health Seeking Behavior on the Health Literacy of Adolescents with Sickle Cell Disease (214-2)

Between 94% and 98% of children with sickle cell disease (SCD) are living to age 18 years and beyond. However, patients with SCD experience significant morbidity and mortality after they transfer from pediatric care to adult care. One hypothesis is that health literacy plays a role in the transition of children with SCD from pediatric care to adult care.

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Speaker:
Elizabeth Perry Caldwell, PhD RN
Libby Rosonet, MSN RN CPHON®
CNE Hours
0.33
12:15 – 12:35 pm Thursday, September 3

Paper Presentation: Supporting Patient Well-Being and Quality of Life—The Effect of Integrative Therapies on Pediatric Hematology/Oncology/Hematopoietic Stem Cell Transplant Patients (214-1)

This session will discuss the significance of providing nonpharmacological interventions to patients using integrative therapies. The literature indicates integrative therapies are gaining popularity in hospital settings and have positive effects on patients. Understanding the impact of integrative therapies will inspire nurses to incorporate integrative principles into their own nursing practices.

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Speaker:
Margaret Brill Conway, RN BSN RYT-500 CPHON®
CNE Hours
0.33
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