2:30 – 3:30 pm Friday, September 4

How to Return Research Results to Patients and Families? The Children’s Oncology Group Experience (C232)

coglogoIn North America, the majority of children with cancer will enroll in a clinical trial at some point during their treatment. Clinical research is rooted in the premise that the quantity and quality of human lives will be improved by carefully conducted clinical and basic research.

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Speaker:
Kimberly Pyke-Grimm, PhD RN CNS CPHON®
CNE Hours
1
2:30 – 3:30 pm Friday, September 4

Preparing Patients and Families for the Off-Therapy Transition (230)

Completion of cancer-directed therapy can be an exciting time for patients and their families but may also be anxiety provoking as they face a new set of challenges and a “new normal.” Patients may be returning to school with new needs for academic accommodations or returning to the care of their primary care provider, who may have limited experience with childhood cancer survivors.

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Speaker:
Emily Browne, DNP RN CPNP
CNE Hours
1
12:35 – 12:55 pm Friday, September 4

Paper Presentation: Outcomes of Serious Illness on Nurses, Patients, and Families—Inpatient Deaths of Children with Cancer: DNAR and CPR Events in Children Who Don’t Survive to Hospital Discharge (225-2)

Death in children with malignancy may result from refractory disease or acute complications during therapy. In this population, little is known about the medical interventions received in the last week of life from the overall cohort of children who die from cancer or related complications as inpatients. Perceptions of under- or over-treatment can cause distress among families and staff, yet the prevalence of do not attempt resuscitation (DNAR) orders, use of CPR, and other supportive therapies remains poorly described.

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Speaker:

Liza-Marie Johnson, MD MPH MSB HEC-C

Belinda Mandrell, PhD RN CPNP

CNE Hours
0.33
2:10 – 3:30 pm Thursday, September 3

Paper Presentation: Global Health—Long-Distance Coaching for a Quality Improvement Initiative to Improve Nursing Assessment and Management of Nausea and Vomiting in Marrakech, Morocco (220-3)

Quality improvement (QI) in health care consists of systematic and continuous actions that lead to measurable improvements in the patient experience. While QI methodology has long been included as a core component of nursing education and professional development in institutions in the United States, QI methodology is novel in many low- and middle-income countries.

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Speaker:
Elizabeth Sniderman, MSN APRN CPNP-AC CPHON®
CNE Hours
0.34
2:30 – 3:30 pm Thursday, September 3

Communication Pearls for Navigating Difficult Conversations (219)

Communication is the root of many conflicts in health care and the cause of up to 60% of all hospital adverse events according to the Joint Commission (Mueller et al, 2018). The nurse’s role is inherently different from the physician’s role in regard to delivering difficult news, but the nurse is often left to answer the questions that arise from these conversations.

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Speaker:
Joy Hesselgrave, MSN RN CHPPN CPON®
Gina Santucci, FNP APRN-BC
CNE Hours
1
2:30 – 3:30 pm Thursday, September 3

Neurofibromatosis type 1 Diagnostic Updates and Plexiform Neurofibroma Treatment Options (218)

Neurofibromatosis (NF) 1 is a progressive autosomal dominant disorder that results from a germline mutation of a protein called neurofibromin that occurs in one out of every 3500 births (AANS, 2019). The clinical diagnosis of NF1 is based on the presence of two or more cardinal symptoms identified in the 1988 National Institute of Health (NIH) Diagnostic Criteria.

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Speaker:
Racheal Bingham, MSN CPNP CPON®
CNE Hours
1
2:30 – 3:30 pm Thursday, September 3

Precision Health Care: Pharmacogenetics and Next Generation Sequencing Through the Lens of Pediatric Oncology (216)

Newly diagnosed patients and their families are offered numerous genetic and genomic testing options including predictive and diagnostic screening. Screening provides guidance for inpatient care based on patient classification, medication management, disease susceptibility, and potential understanding of disease etiology.

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Speaker:
Belinda Mandrell, PhD RN CPNP
CNE Hours
1
12:35 – 12:55 pm Thursday, September 3

Paper Presentation: Supporting Patient Well-Being and Quality of Life—The Influence of Health Seeking Behavior on the Health Literacy of Adolescents with Sickle Cell Disease (214-2)

Between 94% and 98% of children with sickle cell disease (SCD) are living to age 18 years and beyond. However, patients with SCD experience significant morbidity and mortality after they transfer from pediatric care to adult care. One hypothesis is that health literacy plays a role in the transition of children with SCD from pediatric care to adult care.

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Speaker:
Elizabeth Perry Caldwell, PhD RN
Libby Rosonet, MSN RN CPHON®
CNE Hours
0.33
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