Paper Presentation: Program Development — When Two Become One: Joining Two Programs to Promote Family-Centered Care for Pediatric Patients Undergoing Bone Marrow Transplantation (228-2)

11:30 am – 12:30 pm Saturday, October 30

Transplants often require families to be away from family and support networks for long periods of time. Patients are often acutely ill and require specialized care. Because of the complexity of treatment and the potential for complications, transplant is stressful and challenging for patients and their caregivers. To cope with this stress, many families rely on supportive systems, including family and friends.

For these families, balancing access to specialty clinical care with proximity to family supportive systems creates additional distress in an already challenging time. Healthcare leaders at the transplant center and home center aimed to develop and implement a program that promotes patients and families remaining in their home community, with their primary care team, as much as possible during the bone marrow transplant (BMT) process. In most cases, patients who live in the Dayton area receive pretransplant and posttransplant care at Dayton Children’s Hospital (DCH). Patient safety during the crucial peritransplant is supported through expert BMT care at Nationwide Children’s Hospital (NCH). Coordination of care is maintained through detailed communication protocols and NCH BMT providers attending clinics at least twice a month at DCH. This model drastically reduces the length of time patients and families are away from their homes and communities while undergoing BMT.