Paper Presentations Disclaimer: 1 CNE contact hour will be awarded for attending all three paper presentations presented during each time-slot. Partial credit is not available.

Paper Presentation: Parent/Caregiver Experience — It Can Be Hard But It's Not Bad': Documenting Caregiver Perceptions of Benefits/Burdens to Participating in Pediatric Palliative Care Research (204-1)

Documenting the benefits and burdens of pediatric palliative care research on children and their families could yield new knowledge relevant to study methods and allay uneasiness among clinicians and institutional review board members about pediatric palliative care research.

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Paper Presentation: Parent/Caregiver Experience — An Exploration of Experiences with the COVID-19 Pandemic in Parents of Children with Cancer (204-2)

Coronavirus (COVID-19) is a global pandemic that has caused significant morbidity and mortality worldwide. The uncertainty of COVID-19 may lead to significant mental health consequences for childhood cancer survivors and children experiencing cancer treatment, as well as their parents.

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Paper Presentation: Parent/Caregiver Experience — A Systematic Review and Meta-Analytic Evaluation of Psychosocial Interventions in Parents of Children with Cancer: A Focus on Minority Outcomes (204-3)

Much progress has been made in developing interventions to address psychosocial distress in parents of children with cancer. Racial/ethnic minorities may be more prone to psychosocial distress, and little is known about intervention response among these parents. This systematic review and meta-analysis evaluated the efficacy of psychosocial interventions on anxiety and depression outcomes for parents of children with cancer, with a focus on racial/ethnic minorities. Read more...

Paper Presentation: Child/Adolescent Cancer Treatment Experience — Qualitative Content Analysis of Daily Journaling by Children with Cancer Using a Game-Based App (210-1)

The consequences of cancer persist beyond the clinical setting. Resources to assess the child’s quality of life and markers of well-being outside of the clinical setting can support a more personalized approach to care. Color Me Healthy is a new, game-based symptom assessment app that was co-designed by children with cancer and pediatric oncology clinicians.

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Paper Presentation: Child/Adolescent Cancer Treatment Experience — Analysis of AYA Cancer Patient Priority Symptoms Using Text Mining Software (210-2)

The symptoms associated with cancer treatment are a major concern for the adolescent and young adult (AYA) population. Understanding these distinct symptom experiences, especially AYAs' priority symptoms—those that take the forefront of a patient’s concern—can support healthcare providers in providing personalized care.

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Paper Presentation: Child/Adolescent Cancer Treatment Experience — Do CSF Biomarkers Relate to Measures of Cognitive Function in Children During Maintenance Therapy for Leukemia? (210-3)

Children treated for acute lymphocytic leukemia (ALL) receive central nervous system–directed chemotherapy, which is a known risk factor for cognitive dysfunction. ALL chemotherapy treatment is also associated with changes in biomarkers of inflammation and oxidative stress, which may underlie changes in neurocognitive functioning.

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Paper Presentation: Supportive Care/Quality Improvement — Changes in CLABSI Rates Following Implementation of Antibacterial Prophylaxis for Children and Adolescents with High-Risk Hematologic Malignancies (216-1)

Children and adolescents with hematologic malignancies remain at heightened risk for central line–associated bloodstream infection (CLABSI), including CLABSIs involving organisms common to the lower gastrointestinal tract, which have been least responsive to interventions. This project evaluated changes in CLABSI rates following implementation of antibacterial prophylaxis for patients with high-risk hematologic malignancies. Read more...

Paper Presentation: Supportive Care/Quality Improvement — Findings from an International Delphi-Study to Develop a Preliminary Core Set of Nursing-Sensitive Quality Indicators for Pediatric Oncology (216-2)

Although nursing-sensitive indicators (NSIs) have been developed to measure factors influencing nursing care quality and patient outcomes in general and in select specialty areas, a core set of NSIs for international pediatric oncology nursing practice does not exist.

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Paper Presentation: Long Term (or Chronic) Supportive Care — Fertility Status Assessment among Emerging Adult Cancer Survivors (222-1)

Cancer survivors with a history of gonadotoxic treatment are at risk for future infertility and experience significant fertility-related concerns and distress, yet the majority of these patients are unaware of their fertility status.

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Paper Presentation: Long Term (or Chronic) Supportive Care — Individualized Pain Plans in Managing Pain in Patients with Sickle Cell Disease (222-2)

Vaso-occlusive crisis (VOC) is the leading cause of hospital admissions in pediatric patients with sickle cell disease (SCD). Achieving the maximum opioid dose earlier in the admission is associated with shorter lengths of stays, allowing children suffering from SCD to spend less time in the hospital and decreasing their risk for depression and other long-term hospital-associated complications.

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