Association of Health Literacy with Comprehension of Key New Diagnosis Education Concepts in Parents/Caregivers of Children with Cancer (235-2)

2:45 pm – 3:05 pm Saturday, September 17
Parents/caregivers of children newly diagnosed with cancer are expected to adequately care for their child at home upon hospital discharge, which entails understanding how to manage medication schedules, recognize key signs and symptoms, and access care emergently (Landier et al., 2016).
Health literacy is defined as “the degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions” (Ratzan & Parker, 2000, p. vi). While low health literacy has been linked to misunderstanding of medications, high mortality rates, and less active patient participation in care (Berkman et al., 2011, Chan et al., 2018), there is a paucity of literature regarding how low health literacy may affect the ability of parents/caregivers to care for their child with cancer. Very few studies have assessed health literacy in the pediatric oncology setting; of these, health literacy has commonly been assessed subjectively, without a standardized assessment tool for this population (Lynn et al., 2020).