Approaches to Facilitate Patient-Reported Outcome Symptom Assessments in Children and Adolescents with Cancer (205-1)

3:45 pm – 4:05 pm Thursday, September 15
Children and adolescents with cancer suffer with symptoms related to their diagnosis and to cancer-directed therapies; symptoms that are frequently poorly recognized and may be under-treated by clinicians. When symptoms persist or become severe, they can lead to dose-reductions and even premature discontinuation of cancer-directed therapies, which, in turn, can negatively affect treatment efficacy and survivorship. The first step to improving symptom management is to develop a better method for assessing and tracking symptoms.

Direct patient-report is considered the gold standard for assessing subjective symptoms, and provides symptom data that is easily tracked and analyzed. There are now many measures available for children and adolescents with cancer to directly report their subjective symptoms to clinicians. However, these measures are not yet widely being used in pediatric oncology practices.

The purpose of this paper is to describe validated patient-reported outcome measures that are available to assess the subjective symptoms of children and adolescents with cancer, the challenges of their implementation in clinical practice, and the novel electronic systems being developed to facilitate their clinical use.