Hemophilia A (Factor VIII deficiency) and Hemophilia B (Factor IX) are bleeding disorders in which a specific protein in the blood is absent or low, resulting in an inability to form an adequate fibrin clot. These disorders, while rare, can occur spontaneously, be inherited, or be acquired.
Both Hemophilia A and Hemophilia B have varied severity from mild to severe and for most patients, this determines at least in part the therapies used for management. Historically, Hemophilia has been a disorder of pediatric patients as life expectancy was short. It is a condition with a rich history in science and new developments. Treatment breakthroughs have accelerated in the last decade and changed not only the landscape for management but dramatically changed the lives of families impacted by this condition. This session will update the learner on recent developments and how dramatically patient lives have been impacted, making this a lifelong condition for many.
- Career Development Event: Career Development Event: Your CV, Your Key to Professional Development (CDE)
- General Session: Gene Therapy and Gene Editing as a Treatment Option for Patients with Hemoglobinopathies (103)
- Clinical Pearls of Pediatric Brain Tumors for the Advanced Practice Nurse (222)
- Protect Your Professional Life: Beware of Predatory Publishers and Conferences (223)
- Adopt, Adapt, Advance: Utilizing Evidence Based Practice, Quality Improvement and Nursing Research to Transform Pediatric Hematology/Oncology Nursing Practice (224)
- Anne Harvey, DNP CPNP
- CNE Hours: