2:30 – 3:30 pm Friday, September 4

How to Return Research Results to Patients and Families? The Children’s Oncology Group Experience (C232)

In North America, the majority of children with cancer will enroll in a clinical trial at some point during their treatment. Clinical research is rooted in the premise that the quantity and quality of human lives will be improved by carefully conducted clinical and basic research.

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Speaker:
Kimberly Pyke-Grimm, PhD RN CNS CPHON®
CNE Hours
1
3:10–3:30 pm Friday, September 4

Paper Presentation: Patient and Parent Experiences of Cancer Symptoms as Assessed by the Memorial Symptom Assessment Scale for Children (231-3)

Treatment for childhood cancer is associated with symptoms that contribute to poorer psychological and physical functioning and decreased quality of life. Symptom assessment scales have been used to identify the prevalence, severity, and distress related to cancer treatment.

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Speaker:
Melody Hellsten, DNP APRN PPCNP-BC CHPPN
CNE Hours
0.34
2:30 – 2:50 pm Friday, September 4

Paper Presentation: Examining Self-Reported Pain of School-Age Children Undergoing Treatment for Cancer Using a Game-Based App (231-1)

The goal of this presentation is to describe the daily pain experiences reported by 19 school-age children with cancer participating in a trial of a game-based symptom assessment app. We will discuss the prevalence of pain and how participants elected to communicate their pain within the app, using child-centric rating scales, an avatar to localize pain, and free-text responses.

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Speaker:
Katherine Bernier Carney, PhD RN
CNE Hours
0.33
2:30 – 3:30 pm Friday, September 4

Preparing Patients and Families for the Off-Therapy Transition (230)

Completion of cancer-directed therapy can be an exciting time for patients and their families but may also be anxiety provoking as they face a new set of challenges and a “new normal.” Patients may be returning to school with new needs for academic accommodations or returning to the care of their primary care provider, who may have limited experience with childhood cancer survivors.

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Speaker:
Emily Browne, DNP RN CPNP
CNE Hours
1
2:30 – 3:30 pm Friday, September 4

This is Awkward...  Having Difficult Conversations about AYA Sexual Health (227)

Sexual and reproductive health (SRH) is a key aspect of physical health, emotional health, and quality of life in adolescents and young adults (AYAs) with cancer and blood disorders both during and after treatment. AYAs increasingly identify concerns with sexual function, contraception, fertility, and psychosexual adjustment and report conversations on these topics rarely take place with providers.

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Speaker:
Stacy Whiteside, MS APRN CPON® CPNP-AC/PC 
CNE Hours
1
12:55 – 1:15 pm Friday, September 4

Paper Presentation: Posttraumatic Stress Disorder (PTSD) in Nurses: An Integrative Review (225-3)

"Post-traumatic stress disorder (PTSD) is a psychiatric disorder that can occur from direct or indirect exposure to traumatic events. Nurses are at risk of developing PTSD due to their indirect and/or direct exposure to traumatic situations while providing care to vulnerable patient populations.

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Speaker:
Michelle Schuster, MSN RN CPHON®
CNE Hours
0.34
12:15 – 1:15 pm Friday, September 4

Adopt, Adapt, Advance: Utilizing Evidence Based Practice, Quality Improvement and Nursing Research to Transform Pediatric Hematology/Oncology Nursing Practice (224)

Nursing research (NR), evidence-based practice (EBP), and quality improvement (QI) are principal methods of clinical inquiry and provide unique contributions to the science of pediatric hematology oncology nursing. Each of these methodologies have distinct similarities and differences. Due to their complexity, differentiating between the three can be challenging.

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Speaker:

Micah Skeens, PhD RN CPNP

Mindy Bibart, MSN RN NE-BC CSSBB CPHON®

Misty Evans, DNP APRN CPNP-AC BMTCN®

CNE Hours
1
9:30 – 10:30 am Friday, September 4

Gene Therapy and Gene Editing as a Treatment Option for Patients with Hemoglobinopathies (103)

Sickle cell disease is one of the most common inherited diseases in the Unites States, with a homozygous frequency of 1 in 400 African American births. The disease is associated with multiple complications including infections, veno-occlusive pain crisis, acute chest syndrome, and cerebrovascular accidents.

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Speaker:

Haydar Frangoul, MD MS

Misty Evans, DNP APRN CPNP-AC BMTCN®

CNE Hours
1
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