A Sustainable Community Engagement Program Model to Address Hematopoietic Cell Transplantation Education Needs for Patients with Sickle Cell Disease (201)

  Sickle cell disease (SCD) has often been called the “ultimate orphan disease” in the United States. The hemoglobin disorder affects nearly 100,000 people, yet in the 100 years since its discovery, there has only been one U.S. Food and Drug Administration–approved drug. Recent advances in treatment have shown that hematopoietic cell transplantation (HCT) offers a possible cure. Yet, this therapeutic modality is significantly underutilized and lack of access to patient-centered HCT information remains a major barrier.

The Landscape of Neuroblastoma in COG: Yesterday, Today and Tomorrow’s Therapies (C234)

 Many advances in the therapy of children with neuroblastoma have been made in the past decade by the Children’s Oncology Group (COG). New trials build upon those successes in an attempt to reduce therapy for lower risk (LR) and intensify therapy for high risk (HR) disease patients.

Leveraging Smartphones to Capture Symptoms During Advanced Cancer: Integrating an Innovative Idea Into A Grant-Funded Research Study (233)

  Pediatric oncology nurses have an interest in developing research studies to address gaps in knowledge and improve patient care. Furthermore, nurses have identified smartphone technology as a potential tool for symptom assessment research. The purpose of this presentation is to discuss the development of a research protocol based on a single innovative idea, review of the status of this active research study, and provide education related to the use of technology in nursing research.

Expanding Your Educational Horizons – DNP or PhD? (232)

  The commitment to a career focused on practice or research is one of the first decisions pediatric hematology/oncology nurses must make when considering advanced educational preparation and choosing between a Doctor of Nursing Practice (DNP) and a Doctor of Nursing Science/Philosophy (PhD) program. 

A Sustainable Community Engagement Program Model to Address Hematopoietic Cell Transplantation Education Needs for Patients with Sickle Cell Disease (231)

  Sickle cell disease (SCD) has often been called the “ultimate orphan disease” in the United States. The hemoglobin disorder affects nearly 100,000 people, yet in the 100 years since its discovery, there has only been one U.S. Food and Drug Administration–approved drug. Recent advances in treatment have shown that hematopoietic cell transplantation (HCT) offers a possible cure. 

The Nuts and Bolts of Childhood Non-Hodgkin Lymphoma (NHL) (230)

  Pediatric NHL is the third most common malignancy in children. These diverse lymphoid cancers include mature B-cell NHL, lymphoblastic lymphoma, anaplastic large cell lymphoma and post-transplant lymphoproliferative disease (PTLD).

Putting Evidence into Practice: Results from Two COG EBP Teams (C229)

  This session will feature evidence-based systematic reviews conducted by two Evidence-Based Practice (EBP) teams from the Children’s Oncology Group (COG) Nursing Discipline. 

Playing on Our Strengths – Developing Interprofessional Teams in Pediatric Hematology/Oncology (227)

  The care of pediatric hematology/oncology patients requires a diverse team of healthcare professionals. Interprofessional collaboration between these disciplines improves coordination of care, communication, and patient safety. However, the “how-to” of interprofessional team development is infrequently incorporated in healthcare professional training programs.

Baseline Standards for Pediatric Oncology Nursing in Low and Mid Income Countries (226)

  Approximately 80% of children with cancer live in low and mid-income countries, where survival rates are as low as 20%. These dismal outcomes are in sharp contrast with the remarkable improvements in survival noted in children who live in high-income countries. Nurses are crucial to the provision of quality pediatric oncology care, yet many nurses worldwide lack the essential education, support, and resources needed to reach their potential.

In response, baseline global standards for pediatric oncology nursing were published in 2014. The standards outline essential components of a quality nursing program, including safe staffing levels, formalized orientation and ongoing education, acknowledgment of nurses as core team members, available resources for safe care, and policies to drive evidence-based care.

Infant ALL: Instruction Manual, Please? (225)

  Though childhood acute lymphoblastic leukemia (ALL) is the most common type of childhood cancer and is associated with a high cure rate, infant ALL is much rarer and difficult to treat.