Spirituality, Moral Distress, Unconscious Bias and Caring for Yourself in Pediatric Palliative Care (004)

Palliative care seeks to relieve, soothe, and prevent suffering for children with serious illness, including those with cancer and serious blood disorders. This suffering may be physical, emotional, social, spiritual, or environmental. Palliative care is one strategy to address actual and potential suffering in pediatric hematology/oncology nursing practice. APHON has a long history of palliative care initiatives. In 2002, APHON members were instrumental in developing the Precepts of Palliative Care for Children and Adolescents, and in 2003, APHON members attended the first ELNEC-Pediatric training. From the early 2000s to the present, APHON has strived to attend to the needs of educating members on the integration of palliative care into pediatric hematology/oncology care.

Yet, attending to educating members in clinical practice is not sufficient. Advances in medical technology, changes in social and family systems, the advent of managed care, and an unlimited array of healthcare choices have added to the complexity of pediatric hematology/oncology nursing care. As identified in the APHON town halls and our organizational journal, members continue to discuss lack of confidence and competence in attending to the spiritual aspects of our nursing practice, moral distress in caring for children with advanced cancers when therapies exist but cure is not achievable, and encountering unconscious bias in offering and delivering palliative care services. All of these contribute to burnout and decreased resiliency as professional caregivers. This session will discuss strategies for the pediatric hematology/oncology nurse, from novice to expert, in addressing these challenges, including communication, access to resources, and addressing unconscious bias in themselves as well as other members of the healthcare team in caring for children with cancer and serious blood disorders. Strategies to promote resiliency and self-care for nurses will also be discussed and practiced.

Speaker(s):
Deborah Lafond, DNP PPCNP-BC CHPPN FPCN CPON®
Susan Dulczak, MSN PNP-BC CPON®
Kathy Perko, MS FPCN PPCNP CHPPN CPON®
Fee:
$110 for APHON members
$140 for non-members
CNE Hours:
3.25