Victoria Sardi-Brown and Peter Brown are the co-founders of the Mattie Miracle Cancer Foundation, a public charity created in the memory of their son Mattie. In addition to their work to get an evidence-based psychosocial standards of care developed and published, the Browns are now embarking on Phase 3 of the Standards Project, focusing on implementation of the Standards, with the vision of ensuring that all children with cancer and their families receive appropriate psychosocial support, from date of diagnosis through treatment, survivorship, relapse, end of life and bereavement. With over ten internationally recognized organizations and associations like APHON, ASPHO, The Children's Oncology Group, APOSW, APOS, APA, AACAP, CAPO and the Cancer Support Community publicly endorsing and supporting the Standards, the Foundation's hope is that all organizations will recognize that psychosocial care is just as important as (if not more than) the biomedical care.
Early in 2017, Mattie Miracle held a policy roundtable in Capitol Hill bringing together researchers, clinicians, health insurers, accreditation experts and Congressmen to define and to develop strategies for implementation. Mattie Miracle is proud to be a part of APHON as it was bestowed Honorary Membership at the 2016 APHON Conference.
- It's Not Just About the Medicine: Developing and Implementing Psychosocial Standards of Care for Children with Cancer and Their Families (220)
Psychosocial Guidelines (TH12)
- Mattie Miracle Cancer Foundation
- Washington, District Of Columbia