Paper Presentation: Education Across the Cancer Care Continuum — Evidence-Based Interprofessional Palliative Care Education: Lessons for Pediatric Oncology Clinicians (204-2)

Clinician education and expertise in palliative care vary widely across pediatric oncology programs, creating disparities in accessing and delivering much-needed services to children and their families. Providing interprofessional, onsite team training, as well as institution-wide support for ongoing palliative care education, is critical to improving quality of life for pediatric oncology care recipients.

Evolving Treatment Landscape for Primary Hemophagocytic Lymphohistiocytosis

Primary hemophagocytic lymphohistiocytosis (HLH) is an ultra-rare, rapidly progressive, often-fatal syndrome of hyperinflammation where hyperproduction of interferon gamma may drive immune system hyperactivation, ultimately leading to multiple organ failures. The immediate goal of treatment is to quickly control the hyperinflammation and to prepare for hematopoietic stem cell transplantation.


Meet the Challenges of Post-HSCT VOD: An Interactive Case Study of a 1-Year-Old Male With Neuroblastoma (SY1)

Join us as we review a case study involving a pediatric patient with neuroblastoma who was at risk for and subsequently developed veno-occlusive disease (VOD), also known as sinusoidal obstruction syndrome, following hematopoietic stem-cell transplantation. This case study highlights the patient’s history of present illness and gives a detailed, post-HSCT review of the VOD progression, management and supportive care approaches, and the differential diagnosis. Current VOD diagnostic criteria will also be discussed.

Please note that while this optional event is included in the conference fee, selecting the event on the registration form is required to attend. Space is limited. 


APHON thanks Jazz Pharmaceuticals, Inc. for their generous support of this event.

Engaging Pediatric Oncology Nurses in Multi-Site Clinical Trials (C234)

coglogoPediatric oncology nurses at 16 Magnet® hospitals are engaged in a three year, a multi-site research study funded by the American Nurses Credentialing Center. This study is evaluating the effectiveness of two parent education discharge support strategies (PEDSS–symptom management vs. PEDSS–dealing with diagnosis) for parents of children newly diagnosed with cancer.

Beyond the Cure: The Children’s Oncology Group Uses Evidence and Clinical Trials to Study Late Effects in Childhood Cancer Survivors (C229)

coglogoChildhood cancer survivors are living longer than ever before, with overall survival rates exceeding 80%. As a result, survivors are living with chronic late health effects related to their curative treatments. Late effects may include second malignancies, endocrinopathies, cardiomyopathy, infertility, pulmonary function deficits, renal/ocular/auditory disorders, neurocognitive deficits, and metabolic syndrome.

Shaping the Future with Clinical Trials: Empowered Nurses a Key to their Success (C223)

coglogoIn pediatric oncology, clinical trials are conducted to improve survival rates, understand disease biology, and prevent and/or improve management of treatment-related acute and long-term side effects. The majority of children newly diagnosed with cancer in North America are treated on Children’s Oncology Group (COG) clinical trials. In the last 50 years, clinical trials in pediatric oncology have increased the overall 5-year survival rate from under 10% to over 80% today.

Livers, Kidneys, and Germ Cells – Oh My! Helping Nurses Understand the Children’s Oncology Group Approach to Unique Childhood Cancers (C217)

coglogoLiver, kidney (renal cell carcinoma), and germ cell tumors are rare cancer diagnoses in children and adolescents (Ward E., et al 2014). Enrollment on clinical trials is essential for the continued improvements in outcomes for children with cancer; however, uncommon childhood malignancies make the conduct of these trials a significant challenge (Czauderna P., et al 2016).